Assembly makes June the official recognition month for the disease.
The California State Assembly has passed a resolution proclaim the month of June as Scleroderma Awareness Month. The move was sponsored by Assemblywoman Sharon Runner.
“This is the first time the Assembly has recognized Scleroderma Awareness Month,” Runner said. “Assembly Concurrent Resolution 142 seeks to promote a state-wide discussion on scleroderma, and the need for more research to improve patient care for those living with the disease.”
“This resolution is a source of happiness,” Runner said in her floor speech. “ACR 142 represents the joy patients experience when they are able to live their everyday lives due to the medical treatments available to treat the symptoms of scleroderma.”
“It is also a source of sadness as this resolution represents those patients who are in constant pain or need a transplant due to damaged organs,” Runner continued.
“I am thrilled that the California State Assembly recognized June as Scleroderma Awareness Month and that the state is promoting the need for increased research to better the lives of those affected by the disease,” Brian Adams, executive director of the Southern California Chapter of the Scleroderma Foundation, said. Adams, along with board member Joe Matthews, was present in the Assembly Chambers to see the passage of the resolution.
Scleroderma is an autoimmune disease that affects the body’s connective tissue, which supports the skin and internal organs. Currently, there is no cure for the disease and the Scleroderma Foundation reports that an estimated 300,000 Americans have scleroderma and 80 percent of those are women.
Next, the resolution will be heard in the Senate.