Home » Tag Archives: Acid Sphingomyelinase Deficiency

Acid Sphingomyelinase Deficiency

#Save Damian: Santa Clarita ‘Baby Alzheimers’ Patient Starts Experimental Treatment

Last week, local resident Damian Markham, who was diagnosed with “baby Alzheimers” last year, is finally looking forward after receiving permission from the FDA to start an experimental treatment for the potentially fatal disease.  In March, 2021, the Markham family finally discovered why Damian had been having so much difficulty reaching his milestones, even regressing and losing new skills. That ...

Read More »

Save Damian: Santa Clarita Family Raises $800,000 For Their Terminally Diagnosed Child

Ever since their child received a terminal diagnosis at 2 years old last year, a Santa Clarita family fundraised almost $800,000 for research on the “baby Alzheimers” disease that will likely take the life of their son before his fifth birthday. Last year, Brittany Markham was told that her son had been diagnosed with a fatal disease with no cure ...

Read More »

Santa Clarita Child With Five-Year Life Expectancy Turns Two

A family in Santa Clarita is pleading with the community for GoFundMe support after their child with a five-year life expectancy turned two on May 24. Having been diagnosed with Acid Sphingomyelinase Deficiency (ASMD), a fatal condition, last year, Damian Markham is eligible for two studies that could potentially save his life, but funding prompts an issue for the family. ...

Read More »

GoFundMe Set Up After Santa Clarita Child Receives Terminal Diagnosis

A Santa Clarita family is pleading with the community for fundraising support after their 2-year-old son received a “devastating diagnosis,” and without treatment, he will likely die before his fifth birthday.  Recently diagnosed with Acid Sphingomyelinase Deficiency (ASMD), a fatal disease, 2-year-old Damian Markham is eligible to receive two potentially life-saving treatments, but funding is desperately needed to speed up ...

Read More »